Since I last posted, I think that we've spent about 3 days at home and poor mum has only spent 3 days at home since September cos she was camping on a mountain in Africa in her time off LOL. My Nan and Grandad are doing a good job of looking after the house (nan) and the dogs (Grandad) and so at least it's clean when we get back. I've been back at Alder Hey where I had another line put in and into Clatterbridge for some more radiation (I've had so much radiation that I'm sure I glow in the dark) and also a few trips up and down to Surrey. So it's been really busy.
The Royal Marsden is over 300 miles away in Surrey and I've been down there for the last month but haven't actually started my trial yet. Typically, I managed to get both a chest and a line infection in the same few days and then got a nasty bug too! So the trial couldn't start and I basically just created lots of work for the lovely people at the Marsden. They are really, really nice down there and I've realised that we miss out a bit by living in the north. I love the mountains, the people and the relaxed way of living, but I've seen so many specialist people this last few weeks that I've realised we just don't get the same level of care in the north. I've been having daily physio (not sure if that's how to spell that) and have learnt how to breathe properly, plus funny stocking things and medicine to get rid of the extra fluid and a new cocktail of antibiotics for my chest, which for the first time in ages means I'm not coughing. I've tried a nebuliser to help clear the phlegm on my chest and because I'm not coughing as much, that stopped my muscles from aching! Plus they show me the scans and talk about what's what and I just find it all very interesting. So all in all, it's brilliant and I feel good. I've got to say that Alder Hey is fantastic too and I love the people there. I'm not putting it down, but they just don't have all the things that they have on offer in the south. But that is much worse when I come home to Ulverston where there isn't really anyone who is used to dealing with dying teenagers (16 is definitely the wrong age to be dying from cancer in this area). Last year, when I was really ill, there was no offer of anything other than more drugs. I get the feeling that it would be much easier for them if I just went. The people who come are nice people, but it's never the same person and they just aren't used to dealing with teenagers or people who are treated out of the area. It will never change for me, but I hope that someone sorts out the way children and teenagers are looked after.
|I was so pleased to see Robbie|
In the middle of all of this, I went to the Pride of Britain awards night which was awesome. Emma Forbes had me a beautiful dress made in Liberty silk and her friend, Mark Cook, came and did hair and make up for us all (well, just make up for me LOL). I was really sad that Emma couldn't come with us, especially as there were quite a few empty seats. There were so many famous people there and I'd met quite a few of them before. We sat with Holly Willoughby and her mum - they were really nice and Holly really helped to calm my nerves before I had to go on stage. JLS were supposed to be on our table too but apparently one of them had major toothache and so none of them turned up - I found it quite funny in a way, cos all I could think was how much medication I'd had to have to get there! When I got on stage, they asked me who was my favourite Take That member but I didn't want to say. I'll never forgot how nice they all were last year, when they agreed to meet me before their concert in Manchester - it was one of the best nights of my life ever. But I was very, very pleased when Robbie Williams came on stage - I'd been having nightmares that they'd have some celebrity announced but that I wouldn't recognise or something awful like that LOL. We had a chat backstage and it was lovely to meet Ayda too. She is really pretty in a natural way, not like loads of make up and artificial. I'm hopefully going to his concert next week in London, so I'm excited for that :) just figuring out if we can drive across London (and park) on a Friday afternoon. Wheelchairs are a pain when you are trying to get somewhere!
I've been busy making some Christmas cards for my charity and along with lots of other lovely bits they'll be for sale at our Christmas craft fair next week. We're going to be away and so I'm sad not to be going cos that would be one of my favourite things to go to. You'll also be able to buy Alice's Escapes t-shirts, hoodies and my famous Alice mug from Emma Bridgewater :)
That's it for this blog … today was my #christmasinnovember which was fab and so I'm going to do a separate Christmas blog tomorrow x