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19 November 2012

# (hash tag) christmasinnovember

A couple of people have pointed out that #christmasinnovember doesn't make sense. I know it doesn't seem to, but it does if you are a Twitter user. And if you're not, I'm sorry that you don't get it, but it does make sense, honestly :)
At the Festive Lights shop
I started planning my #christmasinnovember about 2 weeks ago and one of the things I was looking for was a nice artificial tree and a company called 'Festive Lights' got in touch with me and arranged for me to go and visit them on the way home from hospital (although my week down south became three) so that they could give me a Christmas Tree. So this week, after about 5 hours on the road, we arrived at a kind of Christmas Grotto! We had been worried that we wouldn't be able to find it, but there was loads of Christmassy lights outside and it was pretty obvious that we were there! OMG it was magical and the staff were all so nice and we spent ages and ages looking at everything. I ended up with a massive tree and loads of purple decorations and pinky purple lights and it is magical and I love it! 

My magical pinky purple tree

I was pretty shattered after the drive home and slept for 2 days, but in the evenings, we managed to decorate the tree and it looks absolutely amazing - what do you think? On Friday, my Uncle Gary organised a race night for my charity and we all went along for a bit of fun. It was quite funny cos the local paper just turned up and we thought it was a bit weird. I do loads of charity things and they've never turned up unannounced like that, so we did photos and my Uncle told them about the night and then they started asking my mum about my #christmasinnovember. So then my mum became suspicious and we're now expecting Monday's paper to say "Alice celebrates final Christmas" or something ridiculous like that. If it does, we'll just be very careful about who we talk to in future!
My BFF Sammi gave me a heart charm
But #christmasinnovember actually started just as 'Christmas in November' 2 years ago. I'd been told that I wasn't going to get better and sent home by Alder Hey and told that there was nothing more to offer. Rather than be miserable, we were trying to plan things to make life a bit more exciting and my mum came up with doing a Christmas Day in November just in case I didn't get to the real one. So we did it again last year and it was just as good, if not better, than the real one. I think that it's good because it's Christmas without any of the pressure. We do all the kind of things that we normally do on the real Christmas Day ... open pressies in PJs, eat chocolate at whatever time, watch a family movie and make a roast turkey meal. We even have crackers and hats and all that stuff! 

#baubleoftheday 
I tweeted about baubles and over the last few days, lots of baubles have been arriving. It makes me laugh that you can put Alice Pyne, Ulverston and they get to me. I think it's just cos we have a very nice post office in Ulverston. Anyway, in the middle of my #christmasinnovember day, the doorbell went and it was four big parcels for me! They were from Hallmark and M&S and it was everything I could possibly want for Christmas, including cards for my mum and dad and wrapping and a Christmas Tree with lots of gold decorations. So that one is going in the hallway and like it or not, the whole house is going to be Christmassy LOL!

Goodies from Hallmark
I'm going back to London and might be there for a bit so I'm not sure when I'll be able to post again. I've been using my phone but our phone and internet bills are over £200 this month and so we're trying not to use them too much. We had a lot of hassle with '3' after they charged mum a fortune extra on her mobile dongle thing and then cut her off so she couldn't do her work. We tried messaging them and calling them and mum even drove to a 3 shop, but they weren't interested until I tweeted about it. Then, only after someone who knows someone there sent an email, they said they'd sort it out. But honestly, if they're only interested in you once you tweet and they start getting hassle, I can't be bothered. We never wanted anything for free, mum explained that she wanted to upgrade or buy credit for me, but the best they could offer was to sell her another contract! So, we're leaving '3' cos of their rubbish customer service. Having an internet connection stops me feeling cut off and I can chat on Facebook and Twitter. Well, Facebook have blocked the link to this blog as either spam or abusive LOL. But it's pointless trying to get through to a human at Facebook and at least we don't pay for that!

Okay, that's it. Wish me luck cos I think that this week is going to be my last attempt at getting on the trial. I'm desperately trying to get everything right and I've been keeping my blood sugars low and watching what I eat and all that. I'm actually looking forward to seeing everyone at hospital, they're all really nice people. Oh, and I'm going to see Robbie Williams on Friday. YIPPEE - if only I didn't have cancer, life would be quite good :)



30 comments:

  1. Hope you get onto the trial, Alice!The tree looks awesome!

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  2. aw Alice you are so Lovely aren't you? I'm glad you had a great day! xxxxxxxxx

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  3. Hi Alice, good luck for your drug trial, will that be at the Royal Marsden? Your "Christmas in November" looked fantastic, I'm so glad you all had a good day. Your purple baubles on your magical pinky purple tree are gorgeous- my favourite colour, too! I forgot to say last time, that you looked very pretty at Pride of Britain- your hair is looking really good. Fingers crossed for you being well enough for Friday's concert, we're all rooting for you. Take care, and very best wishes.x

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  4. UR Uncle Gary & Ms Blundell are Angels here on earth,& yes 1000 times yes the tree is amazing, U R amazing & will like the baubles I sent,they will match ur tree. Another year of tweets, messages , blog comments,and too many other exciting adventures to mention. I like 2 think in some small way the world has given you strength and happiness.Because in return we have found a gem to cherish 4 ever. UR naughty friend,,Tony D God Bless U kid

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  5. OK kid,,I am wishing U luck on getting in to the trial, I think a few thousand prayers may not be such a bad idea also. I will get in touch with the Leprechauns and see what they can do 2 help, Peace out

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  6. Lovely to read about your Christmasinnovember Alice, so glad you had a lovely day with lots of nice surprises. Friday's race night was so much fun, Gary was the lucky winner of the night by far. Wishing you all the very best for your 'date' with 'The Robster', I will be thinking of you and wishing you lots of fun x

    Colette x

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  7. Yeah, but the way that you DO live is just great, and how everyone should live - making the most of each day, and making a difference to others! Which is why you inspire everyone and why everyone loves to hear what you've been doing. Ah so #Christmasinnovember is a Pyne tradition and long may it be so!! I hope that it catches on everywhere so we can all celebrate twice a year ;-) Enjoy Robbie, and good luck at the hospital. We're all always thinking of you and sending positive vibes (and baubles!!) xxx

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  8. Hi Alice, it's a really beautiful christmas tree and I love it ! I wish you good luck for this week ! XXX
    Amélie (France)

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  9. Hope that you November Christmas was the best and Robie Williams WOW lovely Love & light 2 you // Delicia

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  10. You are such a sweet darling Alice and you're in our prayers every single day.
    When you post on Facebook, don't put a link to your blog in the actual post. Say something like, "Link in first comment" then leave a comment on the Facebook post with the blog link.
    Happy #christmasinnovember Alice!!

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  11. Dear Alice,

    I will be praying all goes well with you getting on the trial. You are such an amazing young lady.
    Thank you for sharing your life with us - you are truly an inspiration to many.

    God Bless, Cathy O

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  12. Wishing you the best of luck Alice. Your Christmas in November sounds really fun, I hope you enjoy it xx

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  13. Good luck Alice, hope you get accepted this time xx

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  14. What a splendid tree, Alice - so glad you have had a fantastic "Christmas in November". Thinking of you and praying that you will succeed in getting onto the drug trial.

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  15. Glad you and your family had a lovely #christmasinnovember your tree looked amazing-purple is one of my fave colours. Hope you get on the trial,fingers and toes crossed for you. Have a fantastic time seeing Robbie Williams on Friday. Kelly.xxx

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  16. Your tree is almost as amazing as you are. Hope your christmasinnovember was great and the real one is just as good.

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  17. I love your Christmas tree!

    Best wishes + blessings,
    ---->> Kate

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  18. Hey Alice

    Good Luck with the trial. Your Christmas tree looks beautiful. Take care and I'll be thinking about you and sending lots of positive thoughts and prayers from over her. From MEM, NB, Canada

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  19. I LOVE your pinky/purple tree! And ChristmasInNovember sounds like a great tradition that I just might have to steal for my own family! All the best to you, Alice. I've been following your blog for awhile and always enjoy reading your posts.
    From Brenda in California, USA

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  20. Alice, you make the most of your days! Thank you for inspiring us. Good luck in hospital. I will pray you make your trial this time. Have a wonderful time Friday!

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  21. Looking good, cupcake! I always enjoy reading about your adventures and learning of how you're doing. I LOVE your pinky purple Christmas Tree, btw. You are such an inspiration, Alice. And it's so good of you to share your life with all of us who care so much about you. I wish you beautiful lovely holidays with your family and friends. Big hug to you ;o)

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  22. Lookin' good, cupcake! And I LOVE the pinky purple Christmas Tree. I so enjoy hearing about your adventures and how you're doing. We are so very blessed that you open your heart and sould to us with every post. We are a captive audience for you. You are such a lovely young lady and an inspiration to all who adore you. I wish you warm and yummy holidays with your family and friends. Big giant squeezy hug to you, darling girl!

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  23. What a beautiful tree and lovely Christmas in November!

    Good luck with the trial and enjoy the time with Robbie Williams :)

    Love from Brazil,
    Sheila.

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  24. Dear Alice, I am proud of you that is a courageous person. I wish you all well and I will return again. I pray for the Saint Miraculous Medal to intercede for you. Your Christmas tree is perfect and thanks for sharing!

    Sissym
    Blogzoom

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  25. hi alice good luck on the trials tree looks so cool have my fingers and toes crossed 4u

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  26. Cathi, I tried sharing one of Alice's posts in that method and it still blocked the URL. I posted a bug report and will continue to do so every time it's blocked until they fix it. Meanieheads.

    I DID get around it by spelling out the URL as alicepyne dot blogspot dot com.

    Pleased as punch about your lovely #christmasinnovember, Alice. Keeping you in my thoughts and sending love from Florida!

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  27. Dear Alice, thanks for updating. Wishing you best of luck getting on the trial. Your tree looks lovely and that little bird bauble is so cute! I hope you enjoy the heck out of the gig. Happy Christmas in November to you and your family. xxx

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  28. Dear Alice - Your tree definitely looks magical! Here's hoping you will get on the trial. Happy Christmas in November.

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  29. alice you are wonderful. keep blogging, keep going girl xxxxxxxxxxxx

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  30. Hello !!!
    I'm writing from Spain, I read about your case in a national newspaper, I was struck by the samples furza that, I am very surprised and amazed at the same time that there are people like you so very large.
    Sorry if my English is bad .. not get along ..

    Sandra Rienda Fernández !

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