There's lots of changes this week.
I was back at hospital at the beginning of the week and the chemo I've been trying isn't doing any good and the tumours are all growing, so we've all agreed it's best to stop that and we're going to give radiotherapy another go. So next week I go back to hospital and get to see Freda again (my consultant from Clatterbridge) and look at planning that again. It will be a bit weird to go there 3 times!
Of course, that means that my mum and dad couldn't both go on the Kili trip which I felt so sad about and they were really sad too. They have been planning it for about a year and so it was a bit of an upset for all of us. My nan and grandad would of taken me but my mum and dad were worried that things often change at hospital and so they couldn't risk putting that stress on someone else.
So my mum has gone and right now she's somewhere on Kili and I hope she's having a good time. She has managed to send a couple of texts so I know she's okay but I think that mobile phone coverage probably isn't the best out there LOL.
Anyway, wanted to update you all and let you know that I'm trying a different treatment. I don't mind radiation that much - it just makes you tired and my throat was really sore last year but other than that, it wasn't too bad. Plus I got to meet some lovely people.
Okay, please follow my twitter account @alice_pyne and @alicesescapes if you want updates on all of our Kili trekkers. I can't wait to hear all about it and then I'm hoping that I'll be off caravan shopping :)
Hi alice how are ? it's me another comments but don't worry , I have dealt with radiotherapy it just maked me tired but not a lot
ReplyDeleteSo sorry to read the chemo isn't working, fingers toes and everything else crossed for the radiation. You are an inspiration! x
ReplyDeleteI wonder if you ever got the knitted headscarf I posted tyo you. Just your name and Ulverston on package
ReplyDeleteHugs to you from out west in New Mexico, USA.
ReplyDeleteAre you in increased pain, Alice? Or it's just more of an internal issue at the moment? sorry that the treatment didn't work, hope the radiation effects don't upset your body too much.
ReplyDeleteGood luck to your mum on Kili! Such an inspiration, she must have gotten that from you. :)
ReplyDeleteWishing you all the best for radiography. I'm sitting with a dear friend who is going through similar issues with her treatment. Such frustration when it isn't working!
YOU ARE A BRAVE LITTLE FAIRY .GOD BLESS YOU. SOME TIMES WE FAIL TO UNDERSTAND THE PURPOSE OF OUR LIFE.IT IS NOT SO EASY TO FOLLOW BUT TO ME IT IS TO THANKFULLY ACCEPT WHATEVER HE HAS PLANNED FOR US.I PRAY FOR YOU , ADMIRE YOU ; YOU ARE A SOURCE OF INSPIRATION , AN EXAMPLE TO BE EMULATED BY MOST OF US.
ReplyDeleteHi Alice,
ReplyDeletePrayers the radiotherapy goes well and you don't have any horrible side effects. Glad to hear you mother is safe but sorry your dad didn't get to make it. I'm sure home with you is better that any other place he could be.
Love and hugs,
Aly in SC, USA
Hi Alice,
ReplyDeleteHope everything goes ok at the Hospital. Your Mum and the rest of the Team Alice trekkers are amazing. I wish them the best of luck climbing the "little hill".
Love Kelly.x
I REALLY hope you get better! And know that people love your blog c: ♥
ReplyDeleteHi alice. I hope some radiation will help you.
ReplyDeleteSpirit is stronger than matter.
Stay positive, whatever things are going on, that's the most important battle you won up to now ! I send you all my thoughts of love.
Kisses from France
Jean-Luc
Good Luck sweetie to you that the radiotherapy will shrink the tumours and that your mum is enjoying her trip. I do hope you will feel better soon.....Sending big hugs, much love and many prayers....:-)
ReplyDeleteI wish you the best, Alice! <3
ReplyDeleteHang in there.
Much blessings,
~Kate
Hi Alice!
ReplyDeleteCan't wait to hear about the Kili trip!
Kisses,
Silvana
Dear Alice,so sorry to hear about the chemo and hope that the radiotherapy will help. Our prayers are with you and we are thinking of your Mum as well.
ReplyDeleteJust came across your blog by accident and must say you are amazing! I was google searching "bucket lists" and am so glad to have found your blog. I gotta go make my bucket list now! Thank you for the inspiration! ~Meaghan (United States)
ReplyDeleteYou sound really happy & positive,,thats great,,Hope your family and friends return with God speed,, Kilimanjaro is a light of hope in the qwest of all our lives. never loose site young Ms Pyne, thousands of people carry a torch to light the way for you & ur family.
ReplyDeleteHi Alice
ReplyDeleteYour mum and dad know they made the right decision and I'm sure they wouldn't have it any other way. I'm sorry about the news of your tumors growing but perhaps the third time is the charm and this radiotherapy will help. Good luck to your mum and I hope she's having a blast! I think of you often Alice and I'm sending you all my positive thoughts (and prayers) all the way "across the pond" from NB, Canada. Love, ME
Hi Alice,
ReplyDeleteHope the radiotherapy does you some good, also best of luck to your Mum for the trek! I've been reading your blog for ages and only just subscribed, doh! You really are an inspiring young lady, wishing you all the happiness in the world
Lindsay x
Hi Alice
ReplyDeleteAs you know all your followers send you lots of positivity and positive energy so hope that helps.
Great that your mum is on Kili - it must be quite an experience - I hope you reach your donation goal. Nearly there now! Love to the dogs too from my collie, Milo xxx
hope you are doing fine.
ReplyDeletesending you lots of positive energy.
xoxoxo
Alice,
ReplyDeleteI hope the radiation therapy (as we call it in the states) isn't too exhausting for you, since you are already tired. I also hope there are no other side effects and radiation therapy does its job in shrinking your lumps.
I hope your mom has the time of her life and creates enough memories for the both of you!
You're blog always brings light to my day.
Much love from Denver, Colorado!
xoxoxo
Sending you Dear Alice my love, my prayers. For me cold yogurt after radiation was over helped my throat. Also baking soda gargles. It's never bad during. Only afterwards. Feel radiologist should take a treatment or 30. lol
ReplyDeleteHi Alice you are quite an inspiration and a bright spot in our sometimes dark universe! I have nominated your blog for the one lovely blog award on my blog, I would be honoured if you would accept the nomination.
ReplyDeletehttp://serenassecretgardens.blogspot.com.au/ cheers!
Thank you for your life and the kindness that comes through in each and every post. I'm sharing your sad but beautiful story with all of my friends and family. I'm praying for you and sending you all my love and positive thoughts. Your life has made mine more beautiful. Thank you!
ReplyDelete