Sleepy, Happy!

Happy 2012 and I hope it's a nice one for you. 
I was trying to think about what I should say about not blogging for a bit and then I thought I'd just say that i was a bit sleepy and not really with it to write too much, but that I'm still happy. So I decided I would call this Sleepy, Happy cos I remembered they were two of the seven dwarves and I really loved Snow White when I was little.
I've been sleeping loads lately but still going out in the afternoons and I'm spending lots of time doing charity things in the evenings.  My charity is just about ready to go and it's really exciting cos there's so much going on.  I haven't got the list cos mums downstairs, but I've spoke to some really nice people over the last week and managed to get some sponsors for some of our main charity events and everyone has been really nice to me.  I'm not really very good at phone things or tv stuff and I always get stuck and don't know what to say. I wish I was brave enough but I just can't do it and it's a shame because I keep missing things where I know it would be good if I had the confidence to talk. But it's probably a bit late for me to worry about that now lol. 
We've got lots of things arranged for fundraising and I think that you can see them all here under events. It's just a homemade site for the minute because we still haven't got our proper one going, oh and the pay button thing doesn't work either. My mum is trying to figure that out lol, we were never very good with these things lol. My mum has spent hours and hours sorting the Keswick to Barrow and Coniston to Barrow teams out and I was probably as glad as her when she said that she'd got all the teams in and made the lists. But now she's starting to do other things, I don't think she likes doing nothing! Anyway, it was my mums birthday a week ago and we made her promise to do no work and to leave her iPhone in her drawer (that killed her) and we took her for a nice lunch and my nan did her a party tea as well. Mum said it was her best birthday ever :) 
There is a group of runners training for the Coniston 14 for Team Alice and another brave group who are going to cycle all the way from Lands End to John O Groats - yikes. Simon who is doing that has started a blog so I'll get mum to tell me address and I'll add it later on the side bit.  Then it will be the Keswick to Barrow and my sister is walking the coast to coast walk in the summer holidays with my uncle and then on 27th September, my mum and dad are going up Kilimanjaro with a whole group of Team Alice.  They're all mad!
I was down at Alder Hey after mums birthday and we had a meeting about who will look after me when I need extra care and stuff.  Home are trying to make me have a man and I really don't want him and now we don't know if we're going to have to move just to get a care team who I am comfortable with. I think it's silly that you keep reading about human rights but that is only for people who have come here illegal from abroad or have done a crime or something. Not for children who are dying, I have no rights. We'll see what happens but it really wouldn't matter to me as long as I have Mabel.  I think mum is getting tired fighting and all they do is arrange meetings to discuss things that we already know.
I've been gone off here a little bit but you don't know that, but I got a message about a girl in Scotland called Vanessa. Well, Vanessa is a bit like me because she has cancer as well, but one called Neurobalstoma - I can't spell it and my spellchecker doesn't recognise it ooops.  This country can't offer her any chances now but in America, there are still quite good chances for her to get better again.  The bad bit is that it will cost a fortune but her friends and family are all trying to get the money together to try and save her.  Watch this video of her, she's so lovely and she does still have a chance. I know that if I had even a tiny chance, my mum and dad would do anything to make it happen.  So please have a look at her video and if every single one of my followers on here gave just a couple of pounds, she'd get thousands.  I don't know why the message came to me tonight but it did and I was just blogging here so I think it means I was meant to try and do something to help. She has her own website here and if you want to donate directly, this is her Justgiving page. 
Last week I was invited to open a new charity shop in Barrow in Furness, called the Furness Children's Trust and I was so pleased that they asked me. I've been trying to tell everyone to take any unwanted things in there. They are raising money to support families with children who are ill or disabled buy helping with things like wheelchairs or travelling costs. We hope that we'll be able to offer some of their families a break and they are hoping to help us too, so it was special to be part of it. I'm hoping to go in next week and mum has got a bag of stuff to take down :)
I'm busy making little felted animals and cards for when we have a coffee morning for Alice's Escapes.  My nan is knitting and mum is planning some crafts too so hopefully we'll have some nice things whenever it happens. 
The last thing that happened to me this week is that I found out that I've made it to the finals of the Love Barrow award, a local award celebrating good things in the area. I'm in the Courage section and Milly also made the short list in the Young Citizen which made me happy :)  It made me think about it. What is courage? To be courageous, you have to face a fear and I'm not really afraid of much - well, maybe standing on a stage speaking, but I haven't managed that, have I lol.