28 July 2011
I must learn to shut my mouth!
I said that I had a quiet week ahead in my last post lol. Well, it turned into a mad week back in Alder Hey. I had got more and more puffy through the week and they called me to say that my scan showed loads of fluid around my lungs. I guess that was why I couldn't breathe! Anyway, they got over 2 litres of fluid out of me in theatre and I feel almost new again. So my quiet week didn't happen and we've had visitors all day every day since I got back so I'm still waiting for my chill week.
I got back to lots of nice post, including some from two very special people DF and JI ... it was so lovely to hear from you both and Mum is figuring out how I can send mail back to you. I also had a video sent from Abigail Breslin and Cassidy Reiff who have written and recorded a song for me, to be used to promote bone marrow awareness in the States and worldwide. It's so awesome - I'm hoping that we'll figure out how to put a link on here but don't hold your breath, you know we're useless at anything technical. I also had a lovely package from Beads of Courage. They've sent me a load of beads, each symbolising a different treatment or procedure through my journey and I'm hoping to take them away to do next week.
On Monday we are going to stay in a caravan (thank you to Heather and family) and I'm really looking forward to that as no one will know where we are and we can just stay in our jim jams and do nothing all day lol. I'm off for a really nice treat day at the Lakeside Hotel with Milly and Mum on Wednesday and then we're back to Alder Hey, before heading on to London. So it's busy, busy again but in a fun way. Liberty is going to be stocking my Emma Bridgewater mug and I'm so excited about that, it's a really big thing, so I'm hoping to pop into the store and have a gawp at all the lovely things. My mum takes Milly in there when Milly is at GOSH, but I've never been. If I'm up to it, I would like to go and see Shrek one of the nights and I also need (need not want) to go and look in the pet department at Harrods because I just love the stuff they have - it's really expensive but it's just so amazing. Then on the Sunday, I'm going on safari in Kent lol ... I always wanted to go to Kenya and I know that's not going to happen so this is Kenya recreated in Kent and I'm really, really excited about it.
The most exciting thing that's happened is that when I got back from hospital, Jason from Pets at Home came to visit me and I got two geckos. They are so, so cute although my mum said they're ugly! The bigger one is called Humphrey and the teeny one is called Wally, because we keep having to look really hard for him. When I was going into theatre last week, Mum was trying to distract me with 'Where's Wally' (the book) and the anaesthetist then said he had an app on his iPhone, so I had the Wally bit in my head lol.
If you can, email me a photo of you with your mug - the furthest one has gone to Sydney at the moment. I know that there's a million other things I should be writing, but because I'm so far behind, I can't remember what they are lol. So i'll post this and then I can just add the other bits when I think what they are!
Love Alice x